Growing fast

Guess who is now 4 lbs 0 oz? None other than Miss Taylor Rose! Its hard to believe. She's growing so fast right now. Lets hope its just not because she can't poop. ;-) They backed off the iron and are still giving her suppositories. She's had a couple poops since, but they'll keep her off of iron for a couple days to let her catch up some.

Taylor has been doing good. Her oxygen de-sats have really slowed down. She is however still having some bradies (rapid heart rate slow downs) and there's been a couple times where its more like apnea and they've had to rub her up to get her breathing good again. But most of the time she recovers fine. Its definitely affected by her constipation as well. You'll see her struggling to poop and then she just kind of holds her breath too long.

She's growing fast. Michelle's pretty much going to take over from here on out (stay at the hospital until Taylor comes home) and try to get her feeding as soon as she can. Its a little difficult still with the feeding tube in her mouth, but hopefully they can get that moved to her nose soon. Her nose either has to grow some or she needs to get off the cannula. There's some progress there too. They bumped her pressure down today from level 2 to level 1.5. Assuming she does okay with that, they'll probably just remove it. I hope its this weekend.

She is doing well with maintaining her own heat. Her lid has been up since Monday and there's some confusion whether or not the bed was providing any heat. We don't think so, but they weren't sure so they couldn't finish that process until last night. Last night, Taylor's temperature monitor was removed. Its a big heart that seems to have to be moved around a lot which causes her discomfort. But its gone now. Yeah! One less wire! Her temperature is just checked during cares now (every 3 hours). The nurse was joking with me that the thermostat must be broken because every check since 9 last night (which she was 27 degrees Celsius) has been 26.7 Celsius which is perfect.

We need to get some more photos up and I'll try to take some tonight when Michelle and Tristan are here. Taylor is really filling out and looks good. Its amazing how far she has come. She is really active during cares (kicking at them when they mess with her feet) and was really active today as well when the doctor came in. She was making the doctor work by trying to push the stethoscope away. The doctor said she looked real good.